HOPE EVERYONE SHARES THIS: I’m a father seeking the help of social media, my 1 year old baby boy suffers from a rare genetic disorder that causes seizures, cyclic vomiting, severe reflux, hernias, loose skin and has small limbs, the disorder is called Cutis Laxa type 3 A, (Mutation ALDH18A1)since it’s unheard of, I want to raise awareness and educate people on this disorder.
•This is a Denovo mutation which means new, my wife and I didn’t pass it down to him. This means it could’ve happened to anyone.
We’ve reached out to every News Outlet, tv shows like CHASING THE CURE, DIAGNOSIS, UNNATURAL SELECTION, this is my last alternative: posting on facebook groups. Sharing Nathan story and raising awareness is the key to finding a cure, treatment or even start a research program. God bless you all for your help and support.
#HelpbabyNathan #CutisLaxaType3
My wife and I had to quit our jobs in order to take care of baby Nathan, he need 24/7 care. We were denied IHSS and money is running low, if you’d like to donate please send me a DM. God knows how much we need the help.
https://www.paypal.me/babynathansfund
*This video is from when Nathan was still in the hospital, Even though he’s home with us, nothing has changed, he is still having seizures
